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Thursday, August 11, 2011

Just Say No To Negativity

I have noticed that I only seem to want to blog when I'm mad or need to vent.  I don't think that is doing service to my readers or my intent to spread awareness about autism.  It seems like recently, I am mad a lot.  I have tried so hard to have a positive spin and outlook on our situation.  Lately, though, it seems like everything has gotten so difficult, tiring, and overwhelming. 

I could blog about the frustration of how people mistreat us in public, or how I think we are going to have to change therapists again, or how Logan's fixations and meltdowns are ever present.  I have covered most of these topics and will cover them again here I am sure.

I was thinking a lot today about being so frustrated and overwhelemed all the time.  I don't remember ever needing to vent this much in my entire life.  What was life like before autism?  What happened to my dreams and aspirations?



Who was I before I became Autism Mom, Warrior, Advocate, and Crybaby?  Who was I?  I used to have dreams.  I used to dream of being a writer or a journalist.  I was editor of my high school newspaper and won lots of journalism awards and had my writing published.  I changed paths and went into the medical field and was darn good at what I did.  The biggest challenge I ever had to face was whether to wear white after labor day.  Those days are gone. 



Now I am constantly trying to decide if we should do floor time versus ABA.  I am trying to decide if I should peel the grape or give it to Logan with the skin on it because he doesn't like the texture.  I have to plan a trip to Walmart like a CIA operative.  Every turn, twist, and bend in the road has to be strategically planned out with backup plans and Plan B options.  I have never had to think ahead so much in my entire life. 

There are lots of things in my life that should be celebrated and my children are at the top of that list.  I don't mean to sound like a Debbie-Downer.  I just seem to always have plenty to say about the negatives and the down-side of raising children with autism.

I think it is selfish to think about my dreams and wishes, so I push them out of my mind.  I think that may be why I am finding myself more and more negative.  I can't even remember the last time I had my hair cut?  Everyone keeps saying, "Oh, you are growing your hair out!".  I just smile.  Truth is...I hate it.  I just can't find an hour to make an appointment at the salon and then there is the dilemma of who will keep Logan. 

There is this little part of me that wants to cry and stomp my feet and bang my head.  I want to go to the mall and go shopping...alone.  I want to drive the beach and stay for the weekend.  I want to get a pedicure and manicure.  Just little things that lots of women do that I don't get to do.  At this point in my life dreams aren't even really dreams...they are just simple daily activities that normal women do that I don't get to do.  I am sad about it.



So when I hear a woman complaining about how she wants to go back to school and get her Masters but she has to wait until her kids are out of school, I cringe because all I can think is how I need a pap smear and can't get one.  What is wrong with me?  This is not the right attitude, but I can't shake these negative feelings and jealousy that has started creeping up on me. 

I am jealous when I read on Facebook that one of my friends is about to start their vacation.  I am jealous when I see a Facebook status that says "Girls Night".  I am even jealous when I read, "Just read the best book on my Kindle".  These things are foreign to me because I am cleaning crayon out of my child's mouth, wiping poop off the crib bars, and heading off meltdowns. 





The insanity has to stop.  I don't like the person that I am becoming.  It seems I can be positive and inspirational to every parent out there raising a child with autism, other than myself. 

Going to start working on cleansing my mind and my attitude.  It all starts with me, not the autism.

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10 comments:

  1. I could have written this post! Lately I've been having such a hard time, and I could scream! I, too, want to stomp my feet and throw a tantrum and yell, "I don't want to do this anymore!" I love my kids, but it is sooo overwhelming. What I'm trying to say is: I know how you feel. And I hate the negativity in me, too.

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  2. Amy...I debated on whether to post this or not. I keep such an upbeat persona on Autism Moms and don't want people to get the idea that I am not the inspirational person I command myself to be...but I am human. I mean all of the uplift and the encouraging words I say on my facebook page, the problem is that I am not spending enough time encouraging myself. I am really giving into the bad feelings and find myself envying moms who seem to have a carefree life without the burdens of autism. I am going to work on this...I have no choice but to face these demons. Thanks for letting me know it isn't just me. I think how selfish I must seem, but like I said...I am only human.

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  3. I am constantly working on this. One thing I do is say "why me?" I have to remind myself that perhaps this IS where I am supposed to be. That this is the right lesson, my children are the right teachers for me. Dear god, they push all my buttons. They show me where each one is at, and then my goal is to learn to deal with them. I am where I am supposed to be, doing what I am supposed to be doing. I am in the best of all possible worlds. For Me.
    The other thing to remember is that families only look good from a distance, when you get closer you realize they are dealing with their own issues and their own demons.

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  4. Oh, I am the "Why Me" Queen lol. You are so right...I know it isn't what it seems from the outside looking in and Lord knows I need to remember that things could be so much worse. Pity party over: ) Thanks for putting things into perspective.

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  5. :(

    I so know how you feel. I totally have felt and know I will feel that in the future. If it helps, I have NEVER thought of you as a Debbie Downer. Rather an inspirational woman who makes me laugh, think and helps me connect with others every day.

    We have all been there. Thanks for sharing and 'being real', if you are 'up' all the time, it makes the rest of us feel bad as we wallow around in the muck!

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  6. A lot of my friends and family tell me they wish I would blog more about autism, but I don't know how to do that without sounding so negative, or at least I think I sound negative. When I do write about autism, I don't even like reading my blog very much. But I still like to blog, a lot. I like reading your blog and I love Autism Moms! I mostly read and don't comment very much. Trying to work on that.

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  7. Thanks Carolyn...this is as real as it gets. I don't want to give you guys the impression that I am perfect or have some unreal gift of handleing autism. I need to be surrounded by you guys and the positivity just as much as you all do.

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  8. Jennifer...I love your blog. In fact, your blog was one of the first blogs I ever started following and I liked your blog design so much yours inspired me to make mine look "fancy" lol. I truly don't think we can help taking a negative turn from time to time...it is what it is. I love my son very much but it just seems like I am being lost in the shuffle. I think it is okay to be mad or upset about that. But I am working on it.

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  9. Jessica, You have a right to feel exhausted and frustrated! Don't beat yourself up about it. It's only natural to feel a little self-pity from time to time when you have a special needs child! Pat yourself on the back for doing the best you can, and for sharing your experiences with other moms. And give yourself a break! Can you break away for even an hour this weekend to get yourself a pedicure?? A little R&R might be just what you need. :-) Heather

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  10. Thanks Heather! The timing of this blog couldn't be anymore perfect. My older two boys have been invited to spend the night with a friend tomorrow night and we don't have my stepson this weekend...so that just leaves Logan. I am thinking maybe Grandmama might could keep him and just let me and my husband go out to dinner. We sure could use a night to ourselves. Fingers crossed and thanks for the encouragement!

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